Dr. Bruce Mayes and neurosurgeon Dr. Michael Heafner will present a program about
the new Thermal Ablation Surgery for Epilepsy, and the NeuroPace implant, both recently
approved by the FDA. The new Thermal Ablation technology is so advanced, most
Comprehensive Epilepsy Centers are moving their patients to this procedure,
away from the open skull craniology, as long as the patient meets the proper
Many thanks to Novant Presbyterian Medical
Center, 200 Hawthorne Lane for reserving the 4th Floor Presbyterian Alumni
Classroom. This event is open to everyone, support group members, caregivers,
physicians, nurses, media, etc. Currently two members of the support group are
considering Thermal Ablation.
Ablation link http://www.visualaseinc.com/
We will be
meeting on the 4th Floor in the PHSON Alumni Classroom. Better know as the Presbyterian Alumni Classroom.
Take the Garden elevator to the 4th floor. Exit
to the right and follow the yellow signs. It’s a long walk, just keep following the
signs. If you feel you are lost, call me on my cell at 704-614-0003 or ask someone for directions. We will have this same meeting room through December of 2014. ----------------------
Welcome Below you will find all the important stuff,
the Lowdown on what this group is all about.
The Group is made-up of individuals living with epilepsy. We meet to network with others, gain knowledge from speakers and promote public awareness.
Time, Location, and Parking: The monthly meetings are held on the 3rd Tuesday of each month at 7:00 p.m., Presbyterian Hospital, 200 Hawthorne Lane. You are also invited to join part of the group that meets at 6:15 p.m. in the hospital cafeteria prior to the meeting for some extra networking. The hospital has reserved classrooms on the forth floor for our support group to meet.
Just as you enter the hospital from the visitor parking deck you will find the cafeteria on your left where many meet prior to the meeting.If you enter the hospital through the front entrance, simply ask the receptionist at the front desk for directions. We are currently meeting on the forth floor, but that is subject to change. Call 704-614-0003 if you get lost and need directions.
Our Members: Everyone is welcome. Anyone that has been affected by epilepsy in any way is welcome. You may be the patient, the caregiver, a friend, a spouse, a partner, a parent. Hopefully everyone that attends will walk away a little informed about epilepsy. Our attendance runs between 15 & 25 people and the ages range between 18 & 65 years. We now have an group of Teens from 9 yrs to 12 yrs of age. We have a very diverse group, with members coming from Charlotte, Concord, Rock Hill, Huntersville and Gastonia.There are no dues to become a member. Programs: Programs may consist of an educational topic, networking to improve the quality of life for persons with epilepsy, discussion groups, or social activities. The meetings are interactive and are aimed to improve the quality of life for people with epilepsy.
Here's a sample of our recent meetings and future activities, Programs for 2013 January 15th Dr. Karner spoke. Answering the groups questions. February 19th General Meeting, update on Camp CareFree, Nat. Walk, Purple Day. March 19th agenda in progress. March 26th Purple Day April General Meeting May General Meeting June Jim Martin chairperson w/EFNC July Author Moller August Dr. Kenneth Ashkin Sept Disability Rights & Resources Oct. Nov. Dr. Shankar Perumal Dec. Christmas gathering. Programs for 2012 January 17th Vocational Rehabilitation will provide information on their program. February 21st. Detailed information about the Vagus Nerve Stimulator (VNS) implant. March 20th. Looking for a program about Employee Rights, & Employment Law. March 26th. Purple Day. April . Dutch treat at Showmars for dinner. May General Meeting June We had an attorney speak on the NC Disability Law. July 17th A picnic was planned, but was changed to a general meeting. August 21st Dr. Mayes, Epilepsy Director with CMC main will speak. September --- General Meeting October 16th -- Tricks of the Trade for dealing with Epilepsy. 1st meeting of Teen's Group. November ---- Epilepsy Month November 3rd -- Epilepsy Foundation of NC will hold a Run & Fall Stroll fund raiser at UNCC . November 20th -- First Aid Information, Stroll Wrap-Up, info on Christmas party. December 18th -- Annual Christmas Dinner. Meat and drink provided. Others bring a dish.
Programs During 2011 January 18th Dr. Ashkin spoke on one of the leading triggers of a seizure. January 24th A night at Bowling! January 26th CareGivers Nite-Out! February 15th Still under construction at this time!! Do you have any ideas? March 15th A representative from Disability Rights of NC, will inform us on our rights. March 27th 5th Annual National Walk for Epilepsy in Washington, D.C. April 19th Support Group Meeting May7th Fundraiser for the Epilepsy Medication Fund. May 17th Dr. Shankar Perumal, an epileptologist with Presbyterian Neurology spoke. June 21st Picnic in the Park, Call 704-376-3158 or e-mail CharNCEpilepsySupport@att.net July 19th “Paws With A Cause”. Meet “Nitro” a seizure assist dog. August 23rd General Meeting Sept. 20th Dr. Thomas Gann w/Presbyterian Neurology spoke. Oct. 18th Still to be desided. Sat. Nov. 5th Annual "Fall Stroll For Epilepsy" benefiting the Medication Fund. Nov. 15th Support Group meeting. Dec. 20th Annual Christmas Dinner. Meat and drink provided. Others bring a dish. Programs During 2010 Jan. 19: Test Your Knowledge about Epilepsy Feb. 16:Guest speaker. “How I Navigated the Corporate World with Epilepsy for 18yrs” March 16:Support Group regular meeting March 26: Epilepsy Awareness day, Anita Kaufmann Foundation, www.akfus.org – Purple Day March 27:National Walk for Epilepsy in Washington, DC April 24th:“Seizure Awareness Seminar” put on by the Epilepsy Foundation of NC May 18th:Support Group Meeting June 8th:“Epilepsy Advocate” seminar presented by UCB. 1-866-865-7305 June 15th:Picnic being held in Latta Park from 6pm till 8pm. July 20th:Dr. Bruce Mayes & Kay Coleman discussed common psychological hurdles we face. August 17th:Dr. Chris DeGeorge with Upper Cervical Chiropractic Health Care spoke. Sept 21st:Carolinas Medical Center, Epilepsy Unit Coordinator, Blondene Robinson will speak. Oct. 19th:Dr. Shankar Perumal, a new epileptologist at Presbyterian will address the group. Nov. 6th:Annual Fall Stroll Fund Raiser will be held Sat., Nov. 6th at 9:00am on Campus of UNCC. Nov. 16th:Get information about the VNS Therapy and ideas for living a health lifestyle. Dec. 21st:Our annual Christmas Party.
2009 In July we had a pharmacist; in August we had a neurologist; in September we had a yoga instructor; in October we had a group picnic; in November we had a group discussion; and in December we had our Christmas Party. And that concluded a fabulous 2009. ---------------------------------------------------- Thanks! Our support group wishes to thank Presbyterian Hospital for providing a safe place for our meetings. You must visit www.SupportWorks.Org when searching for a support group in Charlotte. Their search engines helped bring people like you to our web page.